About

This blog is a real, honest view of what is happening with me physically, mentally and emotionally. For me, since my cancer/stage is rare, I hope to provide some insight for others with the same disease, and to find some insight myself. It’s always comforting to know that you’re not alone.

After a stamp of remission in October 2013, I relapsed in December in stage 4. On 3/13/14, I underwent an auto stem cell transplant. For 6 months, life was great. I even ran a half marathon! Unfortunately, once again, I relapsed in stage 4 this past November. I sought treatment at MD Anderson Cancer Center in Houston, TX. It was there that I learned my cancer had transformed into a much more aggressive non Hodgkin’s lymphoma.

I am terrified to die, but am working on finding a sense of peace. Most of the time though, I tend to laugh at my situation(s). I mean after all, if you don’t have a sense of humor, you can’t get through life.

Warning: This blogger is very sarcastic. Take it or leave it. Also, I swear a lot.

Ps. I’m not going to die. That would be total bullshit. Besides, I have too many Legos to pick up.

Me and Mack, my little miracle.

Me and Mack, my little miracle.

13 thoughts on “About

    • Dear Mary, Just Dx 8 mo ago w/ stage IV Mantle Cell NHL a sub type of B cell very rare bad prognosis in general. I’ve been all over for consults currently at MDA to see Michael Wang supposed to do nothing but MCL for an opinion. I’m addicted to researching since no standard protocol or cure for my NHL. For whatever it’s worth: Call Carl June MD at U Penn -they are in clinical trials for CAR-T cell therapy- in a nutshell “edit your own T cells”, clone them, then reinject to kill your cancer- he saved a woman who had only 2-weeks to live after 9 failed tx for MM. A miracle. Now other places doing trials too. If not, Stanford has clinical trial taking your tumor cells creating a personalized Vaccine then inject and kills your cancer. Lastly, Jama just published clinical trial on Ritux plus Lenelinomide for relapsed MCL 94% remission 85% after 2 years. Another trial open: NIH has a national trial called UMatch- they process your specific genome and match drugs that are specificly “active” to your mutations. So a lung or melanoma with sane mutation may be used on a NHL patient. My heart goes out to you. Best advice I have received so far is go to “HealthyJourneys” on ITunes. Download Bellaruth Naparsek tapes on Healthy Immune, Fighting Cancer to your phone and plug in everynight. Helps with sleep ( plus Ambien) and with stress. My heart and prayers go out to you and your family. You are Beautiful and BraveStrong, I live in Michigan. What is the name of your onco that went to UMich? Female last name starts with “C”?
      Warmest hugs to you,
      Wendy

      • Dr. Campagnaro. Thank you so much for sharing your story and your research! I will definitely look these up, and keep you in my positive thoughts and prayers! ❤️

  1. Just found your blog from you being freshly pressed. Both that post and this brought tears to my eyes. I don’t know you, but I’m wishing you well and sending positive thoughts your way.

  2. I lost a good friend to Hodgkins in 1985. I have never forgotten what he went through and how lucky I am to be alive every day. Facing challenges with grace and compassion, so much can be learned. I am always humbled by the opportunity to face each new day. My thoughts and prayers are with you and your family.

  3. I was diagnosed with uterine cancer about 2 months ago. I had a hysterectomy and I will need some treatments. I had a set back with an infection after my op in the pelvic area which put me in the hospital for a week. Your blog is amazing, you are an inspiration to me. I pray everything will work out for you and you can go home and continue your life with your family. You are very brave and you make me feel brave. Keep on fighting as you have a wonderful life ahead of you, we both do.

  4. Oh and I forgot to wish you A Happy Belated Birthday. Your photos were great. And it’s obvious how much you are loved. I hope it brightened up your day? Now if only we started to have Spring like weather I think it would help.

  5. Finally I have found someone that has my sense of humour! I am a new reader of your blog, and I’m looking forward to hearing your story unfold. I’m a great believer in keeping it real. Keep fighting, keep blogging and keep picking up those lego pieces.

  6. I’ve been following you for quite sometime throughout this journey. You’ve got this. You are fucking amaze balls. I love your sense of humor through the hard times. A true inspiration. Fight on! I don’t pray often but I am praying for YOU.

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