Still having random fevers, which is cool. Or hot. Whatever. It’s annoying, but worse than that is the pain. I finally saw pain management after putting it off for years, trying to be a tough guy. But after weeks without sleep, I had no other choice. They put me on a long acting pain medicine which has actually seemed to help a bit. It’s a start.
But here’s the best part. This whole time, as I typically do, I’ve been weighing out the pros and cons of my situation. One thing that was always tipping the scale in my favor was that I wasn’t going to lose my hair. Well as it turns out, 10% of people will lose their hair on this drug, and lucky me, I’m part of that 10%. I woke up the other day with hair on my pillow and bald patches on my head. I haven’t shaved it yet, but I will probably have to soon. I keep clogging the drain in the bathtub because so much hair falls out when I shower. *long sigh*. It would be nice to not look like I have cancer for one year at least! Cancer, you asshole.
in other news, thanksgiving was great. Made lots of food. Spent time with the in-laws. We put up our Christmas decorations, and I didn’t even have a panic attack! That’s one step in the right direction I suppose!
i have some treatment and blood work on Tuesday, then have my second dose of brentuximab vendotin on the 1st. Will keep you updated! Thank you for all the thoughts and prayers this week!